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July 2007

July 26, 2007

The ADA turns 17!

July 17 marks the 17th anniversary of the Americans with Disabilities Act, which President Bush hails as

"one of the most successful and compassionate reforms in our Nation's history."

This legislation promotes equal opportunities and broad protection for people with disabilities and has set the stage to end the segregation and isolation of people with disabilities. Together, we are working to fulfill the ADA's promises and make dreams possible for people of all ages with developmental disabilities and delays. Your support makes this possible.

Click here to learn about the history of the ADA and the role regular people with and without disabilities played in its passage.

Melodies Counter Maladies

Recently the Daily Southtown published an interesting article on the benefits of music therapy for the treatment of cancer and rehabilitation. Music therapy is an important tool in communicating with individuals at different levels; it helps to stimulate, grab attention and build motor skills.

Evidence mounts on the medical benefits of music therapy.

Published by the Daily Southtown July 17, 2007

There's a reason even the most flat, tone-deaf and shrill of us sing in the shower. It makes us feel good, says music therapist Donalyn Richardson.

Doctors, too, are embracing the feel-good properties of music for the treatment of cancer and rehabilitation.

Banner Desert Medical Center in Mesa, Arizona, for example, recently received national certification as a music-therapy internship site. The program reflects the fact that music therapy is gaining ground as a complementary treatment.

"It's definitely a feather in our cap," says Richardson, Banner Desert's music therapist. It signifies "more of a support from a traditional medical standpoint that people are more than their bodies."

Music therapists say they are being afforded the same credibility as speech and physical therapists, thanks to growing evidence of music's tangible health benefits.

Consider:
*According to a study last year released in the Journal of Advanced Nursing, people who listened to music for an hour every day for a week reduced their chronic pain by up to 20 percent and lowered their depression by as much as 25 percent. Participants in the study kept a pain journal during the week; the study didn't indicate how long patients benefited from the therapy after it was discontinued.
*The Cleveland Clinic in 2001 found that music lowered stress levels and helped build immunity in young cancer patients. It is unclear how long patients' immunity stayed elevated.
*A University of Miami researcher who continued his work at Michigan State University found in 1999 that levels of melatonin in Alzheimer's patients increased and that patients became more active, slept better and cooperated more with the nursing staff after undergoing four weeks of music therapy. The increased levels of melatonin - a hormone linked to sleep regulation, increased immunity and a calm relaxed mood - stayed elevated for up to two weeks after the music stopped.

Other research suggests that music boosts weight gain in premature infants, lowers the heart rate and improves the recovery time of stroke victims.

Music therapists offer more heartfelt evidence. Richardson speaks of writing lullabies with mothers on the verge of premature delivery so they can relax and know they are bonding with their child, and of being thanked by a family that was comforted when she sang "Amazing Grace," at the bedside of a dying person.

Music therapist Lisa Sampson, who works with Phoenix Children's Hospital, says anecdotal evidence, such as a patient who previously showed no arm movement but who now can shake a tambourine during music therapy, abounds.

"What's really neat about music is that even if I don't speak Taiwanese or Korean, I can bring in a huge ocean drum and the child and I can move it back and forth," Sampson says. "We don't need to speak the same language to understand one another."

Sampson began doing music therapy in the Phoenix area in 1999. She now oversees 16 people who work in hospitals and other medical settings.

In a tiny circle of chairs at Banner Desert Medical Center, parents accompanied children who, in wheelchairs or attached to intravenous drips, banged on the drums they held in their laps. Richardson told them to "think about what's bugging them big time," to put that thing in the center of the drum, and to pound as loudly as they want.

Dallas Vaughan, 6, put his boredom and frustration at being separated from his siblings in the drum's center with a series of pings. His father, Scott, beat his own drum loudly.

"I couldn't say enough good things about this program," Scott Vaughan says.

Maureen Cahill, senior clinical manager of pediatric oncology at Banner Desert Medical Center, also weighs in, saying she believed that music therapy was a frill 15 years ago.

"Then I became convinced," she says. "If we could study it here, I do believe these kids who use music as a symptom reliever use less pain meds, less often."

July 24, 2007

Young adults with disabilities can now attend school through age 21

The State of Illinois just passed a law allowing students with disabilities to receive special education services up until the day of their 22nd birthday. This provides new educational opportunities for these students, who previously could only attend through June or August of their 21st year. This law goes into effect immediately.  http://www.thearcofil.org/document.asp?did=884

July 17, 2007

Celebrating Diversity: The Disability Pride Parade

This Saturday, July 21, thousands of people with and without disabilities will join in the Chicago Loop for the 4th Annual Disability Pride Parade. This fully inclusive celebration is designed to "celebrate and strengthen the pride, power, and unity of people with disabilities, our families, and allies" and hopefully "change the way people think about disability."

The parade starts at 11 a.m. and ends with a post-parade celebration in Daley Plaza. Join the fun!

July 02, 2007

New Funding To Expand Services For Children With Developmental Disabilities

New Funding To Expand Services For Children With Developmental Disabilities

Posted by: Illinois Health/Human Services on 06-18-2007.

Children With Developmental Disabilities Illinois will receive $8.6 million in federal matching funds to provide a range of specialized services to almost 800 children with developmental disabilities.

The funds, administered through the Illinois Department of Human Services (IDHS) Home and Community Based Services (HCBS) program, will allow more families to keep their children at home and still be able to provide them the specialized care they need.

By establishing Medicaid waivers, Illinois is able to waive regular Medicaid rules and create this new funding source for Fiscal Year 2008. The approval of the waivers was announced by Deputy Governor Louanner Peters at a joint videoconference of the Developmental Disabilities Waiver Committee, the Autism Task Force, legislators and other developmental disability advocates.

"It is often a struggle for families who have children with special needs to make sure their kids have the best care possible," said Gov. Blagojevich. "These two new programs will give hundreds more families access to support and services so they can care for their kids at home."

The new waiver programs, approved by the Department of Health and Human Services (HHS) Centers for Medicare and Medicaid Services, will serve young people age three to 21 who meet the Intermediate Care Facility for Developmental Disability (ICF-DD) level of care. Children with developmental disabilities include those with mental retardation and other related conditions such as Cerebral Palsy, Autism Spectrum Disorder, and Epilepsy. The children's support services waiver will prevent or delay the need for out-of-home care for 600 people and the residential services waiver will provide services for approximately 175 to 200 families whose children need out-of-home residential services.

"Through Medicaid waivers such as these, Illinois is able to provide assistance to even more children and adults in need of long term health care services," said Illinois Healthcare and Family Services Director Barry Maram. "Under Governor Blagojevich we have made great strides in furthering the growth of our Medicaid system and have found more ways to extend these critical health benefits to more individuals."

The children's support waiver will offer a range of services including personal support such as training, respite and personal care; home and vehicle accessibility and modifications; adaptive equipment and assistive technology; training and counseling services for unpaid caregivers; behavior intervention and treatment; and service facilitation. The children's support waiver is very flexible for families. Parents may use a monthly allocation of funds to purchase services from the list of covered services. They may purchase these services from traditional developmental disabilities providers or may purchase them from individuals in the local community who wish to provide personal support.

"We appreciate the support of the legislators, advocates and families who helped obtain the new waivers. They will enable more young people with developmental disabilities to enjoy meaningful relationships with family and friends and others in their lives and experience personal growth and development," said IDHS Secretary Carol L. Adams, Ph.D. "The array of services will provide opportunities for the young people to have more choice in their services and how they live their lives."

The new waivers are approved for a three-year period beginning July 1, 2007 and can be renewed at the end of that time. The IDHS Division of Developmental Disabilities administers the Illinois system of programs and services for person with developmental disabilities.